A quick update on how Seth has been progressing since chemo follows: He has taken everything they have thrown at him and is doing really well. The doctors and nurses have commented at how well he has tolerated treatment so far. Chemo finished on Sunday and Monday, they told us that there was a very real possibility of going home for a while sometime in the week. On Tuesday, however, his counts (blood results) bottomed out and they wouldn't let him leave as the risk of infection was so great. He needed a platelet transfusion late Tuesday night and a red blood cell transfusion Wednesday. His counts continue to drop so they will just top him up with what he needs when he needs it. He seems to be developing mucositis which in simple terms is ulcers in the digestive tract. He is in alot of stomach pain with this so they are keeping him comfortable with pain relief. They believe he might have it in his throat as he complains of a burning pain there and he has an ulcer on his tongue as of this morning. Hopefully this won't worsen but some poor kids end up with a mouthful of painful ulcers. He has felt nausea as well, however this has been really well controlled with medicines as well.
He is keeping himself occupied with lego from the play therapist, school work, dvd's, playstation games and practising his guitar skills with the music therapist. There is a library at the hospital as well to visit and borrow books and dvd's from. We try to get outside the hospital to get some fresh air and sunshine once a day, but with the rain falling recently the most we can do is walk the halls of the hospital or visit the starlight room.
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