This week has been full of highs and lows.
On tuesday Seth allowed me to shave his head as his hair was everywhere and starting to really annoy him. Afterwards, he was very subdued - I think reality hit him a bit harder that he is really doing this all over again.
Seth's kidneys were having difficult functioning on the antibiotics that were being given to him so the drs took him off it on Wednesday and we had a semi-normal day. Seth has discovered that there is a KFC and a McDonalds within walking distance from the hospital and although he complains of being tired and weak (an effect of steroids) he seems to gather the energy for a walk to get some chips! Amazing to watch him perk up when he is going to get the food he is after. We had a great day Wednesday when his uncle (Andrew) came for a visit and we took him for a big bike ride out in the sunshine and somehow ended up at McDonalds!! Fancy that!!! When we arrived we got a phone call from my aunt(Wendy), cousin(Roxanne) and cousin in law(Amanda) who had her gorgeous baby girl(Madison) with her. They ended up joining us at McDonalds and it was so so good to feel like a normal person visiting Maccas with family. We walked back after Seth was showing disgust at how long he had to sit around listening to the women talk. Luckily he had my brother for company so they could talk mens business. Once back in his room for a well deserved rest his other uncle(Shane) and aunty(Dan) turned up for a night of entertainment.
The next day, Seth wasn't feeling so well, he was tired and lethargic and I thought maybe it was too much for him. Turns out he got his temperatures back with a vengeance - so back onto the drip and antibiotics - the same ones that cause his kidneys not to function correctly. So he will be monitored and doses adjusted to try and keep his kidneys working well.
The doctors gave Seth an xray on his chest on Friday to check if the chemo had been working and turns out the mass in his lungs has now disappeared. This is fantastic news and a great relief to know that things are working well. We will know more next week when he has a bone marrow aspirate done as to just how well treatment so far is working.
Seth begins his new rounds this coming week and also his kidney function test to see how they are going. So busy week for him coming up.
Nice to hear that you had a touch of normality at Maccas with family, moments to be treasured. Keep going Seth, you are doing well and will beat this. Thinking of you all and sending oddles of positive thoughts your way. Pete and Jan.
ReplyDeleteSeth, it's clear you have a loving family around you, but remember you also have a worldwide family, all praying for your full recovery. Much love from Scotland. xx Douglas and Euan
ReplyDeleteA big hello to you Seth from the UK. I've just seen your story and wanted to write a few words of encouragement because 19 years ago I was told I had leukaemia and needed a bone marrow transplant. By God's grace, my brother donated enough bone marrow for my transplant which I had in March 1994 during six weeks in hospital in London. I'm now 49 and have a 6 year old son and have been clear of the condition for 14 years. Some days when I was feeling poorly, God must have known because I would get a message of love from someone or an unexpected visit which really made me feel better. Having family all over the world means that so many more people can pray for you. I'll do that tonight with my wife Jacqui and son Jacob and ask God to help you through your treatment. I'll also keep looking at this blog to see how you are doing. Keep strong and positive and let me know what it's like where you live in Australia. Jacqui and I have been to Melbourne where her brother lives and also to Sydney which I know is near to Picton. Jacob wants to visit his cousins at Christmas this year so we may even be in Australia in December. Lots of love to you (all) from Bro. Martin, Sis Jacqui and Jacob - Ashby de la Zouch, UK
ReplyDeleteHi Seth,
ReplyDeleteLet you know that you are in our thoughts and prayers.
Love to you and your family from Josh and James Prasad,VancouverBC,Canada.