Seth

Seth

Saturday, March 10, 2012

Another week in hospital

Just a quick post to let you all know how he is progressing this week. Seth developed a temperature this week so he won't be released from hospital until his counts rise to a certain level (0.2 neutrophils for those who know what I'm talking about). Basically because he is still getting chemo and steroids, his counts are unlikely to reach that level anytime soon.
He developed mucositis in his mouth this week also, but it diminished the very next day which was fantastic. He had his painful needle of chemo this week and was incredibly brave. His hair is falling out all over the place, but he won't let anyone shave it. The steroids are starting to kick in and he is becoming increasingly teary and cranky. He is starting to get his little chubby cheeks. Thursday was a very difficult day for him. He was just so upset and incredibly homesick. Nothing could cheer him up. By 3pm the nurses unhooked him from his iv line and got physio to deliver a Ben10 bike and he spent the afternoon riding his bike around the hospital corridors as it was a miserably rainy day outside. This cheered him up a great deal. So this has become the routine for the time being. He gets unhooked at 3pm when he has a break in his medicine and off we go on his bike. I think it is a little bit of normality for him and it really makes a difference. It's good for me too as he burns off all that excess energy.
Sienna had a day off school this week to come into hospital for a blood test to confirm her match to Seth. We put many emla patches on her to numb her skin but she lost her bravado when the needle came out and reality hit. She screamed like we were cutting her in two through the entire ordeal. When we told her it was over, she sat up and said "I didn't feel a thing". We couldn't believe it. It will be an interesting time when it comes to getting the bone marrow from her. She won't make life easy for anyone that's for sure!!!

1 comment:

  1. Thanks for telling yours & Seth's & Sienna's story, touching, amusing and brave. My thoughts are with you, God bless you all.

    David Brewer

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