We didn't get the news we were hoping for today. They can't give Seth the all clear yet as even though his blood counts are increasing, his bone marrow hasn't grown back enough for them to tell whether any leukamia is left to grow back. So... we have to be patient and wait another week to see whether the chemo has worked.
We were told that it wasn't an expected reaction, but it also happens now and then and although it isn't nice to have to wait, it also isn't devastating news. It just happens to some kids, they don't know why and each child reacts to leukaemia differently and to the chemo differently. Patience is a virtue!
We have the rest of the week off which is a blessing as Seth is turning 7 on Thursday and Brett's birthday is on Friday and we are just soooooooo tired. I can't remember being so tired ever. We will be going back on Monday for a blood count and Wednesday for another bone marrow aspiration. Hopefully we get the good news on Thursday next week that he is in remission and they will start him on the next phase of chemo.
They said that it is very, very important with T-cell patients that they are in remission before starting the next phase, so they are being very vigilant and making sure things are done by the book and are not rushed through. I feel like we are in very safe hands with our doctors.
Thanks again for all these updates, its become a daily routine to login and read about my little nephew 900km north of me. Hope Seth and Bretto have good birthdays this week. Deb x
ReplyDeleteHappy birthday Seth for Thursday and Brett for Friday - hope you both have a great day. I can only imagine how exhausting it is for you all both physically and mentally - thinking of you all. Shell xo
ReplyDeleteHey there, so good to see you all again after our holiday. Hope all goes well this week, and that you have the positive results that we are hoping and praying for. Hope you're feeling a bit better now Ali, stay strong dear one! God bless you all - love Mum (Annie)
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