On the 10th June 2010 Seth was diagnosed with Leukaemia. Three years have passed - some filled with joy, some filled with pain and disappointment. One third of his life has been taken up by this disease so far. Sienna wasn't old enough to have any memories of family life before Seth became sick. I cannot wait to show her the freedom that good health will give our lives. Unlike many families we have met along this journey, we still have our beautiful child by our side and that is all that matters. I count myself lucky.
We went to hospital on Wednesday for a check up. Seth has been gradually getting worse as his steroids have been dropping. He has been nauseas, tired and had no appetite. Thankfully the doctors didn't hesitate to put his dosage back up. It is getting tiring waiting for his GVHD to go for Seth and us. We are stuck in this limbo. Not going forward, but thankfully not going back. His last bone marrow test was negative for cancer. We are looking forward to getting on with our lives and taking a big family holiday. We just can't plan anything at the moment. The journey is trying and tiring and I am becoming impatient for its end.
