Central Line Chemo finished!!!

Last week was extremely busy with 4 days at hospital for chemo and a lumbar puncture. Seth has finally finished the chemotherapy that needs to be administered through his central line. This means that in a couple of weeks, the line can be taken out. He has been to school again for a couple more days, but is too tired to make the whole day. Tomorrow he has to have a platelet transfusion and also a haemoglobin transfusion. His counts are expected to drop further as the last two weeks of chemo continue to take effect. Hopefully there won't be too many transfusions for him as there is always the risk that he will develop a fever with a transfusion.
Once his counts begin to rise again, he will be put on what they call "maintenance" which is oral chemotherapy. They still haven't told me what is involved in maintenance so I cannot pass on any information about the next stage just yet.
Seth is very much looking forward to getting his central line out. He talks about it every day and asks how much longer every day. He says he doesn't remember what life was like without a central line, so it will be a great day when it comes out for him.

4 days of chemo and finally back to school

I am very excited to report that today (Friday) Seth has resumed school. He was very excited, but very nervous. He has been waiting for this day to finally come. I have spoken to his teacher this morning and feel very confident in her. She seems quite protective of him and I know she will look after him really well. I still left feeling a bit sick in my stomach from nerves and I can't stop wondering how he is going.
Seth has done very well getting to school today considering that he has had 4 days in a row of chemo. Monday, we arrived at 9am for his 6 hour treatment of chemo and Tuesday morning he woke up vomiting so luckily we were able to go to Campbelltown for his chemo. Wednesday morning we had a very early start. We left home at 6:30 to go to Westmead for his lumbar puncture and chemo. He was vomiting as we walked into the clinic, so they topped him up with anti nausea medicine to help him out. Yesterday we went to Campbelltown for his chemo and luckily he woke up feeling okay today. I gave him some anti-nausea medication and so far, no phone call from the school to come and collect him.
Next week he has another 4 days in a row of chemo with another lumbar puncture. This means that he won't be able to go to school every day next week, but hopefully he will get there for a couple days. At least we have made a start.
Seth still has no hair and he has been a naughty boy playing outside with his hat off. He has been told by me and by the nurses not to do this and unfortunately yesterday he did it again and now has tiny blisters on his head from the sun. This has scared him a bit into listening a bit more and now is very responsibly wearing his hat at all times (even inside) - talk about one extreme to the other!
Sienna has very successfully started "big school" and loves it. She is the first one up and can't wait to get her day started. She gets dressed and packs her bag and lunchbox and is ready to go with an hour to spare.
Brett saw his doctor this week and the fusion is strong and healthy. Unfortunately his nerve pain is not going anywhere and the doctor wants to give him a cortizone injection to see if this helps. Now he is able to start physio and exercises so hopefully this may help the pain a bit as he strengthens his back and stomach muscles. He is also getting booked in to see a pain management specialist.
I will update next week after Seth gets through his 4 days of chemo.