Routine visit today to check his bloods etc. Everything came back okay today and he only needed a monster needle in the butt (poor boy but no tears). Medications are working as expected but he will probably need a full blood and platelet transfusion on friday as his haemoglobin and platelet levels are dropping quite quickly. He is doing okay considering as he is back to his lively cheeky self today which is uplifting for all of us. We have attached some photos of some of his progress so far and you can see how much the steroid treatment with the chemo has made him bloat....quite amusing really and there are some photos after his first surgery which show his central line which is basically a direct line to his heart for taking and giving blood and also for administering the chemo treatment.

Welcome

Today, Seth is doing well. We had a HUGE week last week... Tuesday we were at the hospital at 9am for a blood transfusion and a nasty chemo needle. We were back on Wednesday at 7:30am for a bone marrow aspiration, lumbar puncture and chemo into the spinal fluid. Unfortunately I gave Seth a drink of milk to take his morning meds at 6in the morning and we had to wait until midday until they would put him to sleep. It was a looooong day but I amused myself by kicking myself about the milk. I should've given him either water or apple juice. Won't be making that mistake again!
We were back in on Friday for another nasty needle (which he handles like a superhero) and two other chemo's through his central line.
We have been so blessed by so many people, particularly providing meals, which are so welcome after the long days at hospital. We have been given gifts of money and loads of presents to keep Seth occupied. All these things are so appreciated and welcome. Thankyou one and all.
So far we are heading into hospital on Tuesday for the nasty needle, I will be taking Brett into St Vincents for his scan and post op appointments to see how he is progressing (hopefully we will get the date for his next op too). Then I expect we will be back to Westmead for Friday for another round of chemo.
Over and out.