Home for a few hours

Today is day 16 of our hospital stay. Seth's neutrophil count is still below 0.2. We have a wonderful paediatrician at Campbelltown who is very kind hearted and sympathetic. He has kindly allowed us some time at home today for a few hours which will do a world of good. My mum has kindly offered to sleep over at hospital with Seth tonight so that I can get a decent sleep tonight. I am not sleeping well and it has caught up with me. Seth's counts are coming up ever so slowly and the oncologists at Westmead will not budge on letting him go before he reaches 0.2. So.... we wait and we wait some more. Seth has moments of rage, tears, hyperactivity and with the wonderful nurses at Campbelltown he has some pretty happy times too. The nurses at Campbelltown are second to none in their care, patience, kindness and humour. We didn't end up going to Westmead as there were no beds available and Seth wouldn't have been able to go to the cancer ward where all the entertainment is. So it was best to stay close to home. He is in virtual isolation as there are some kids around with Bronchitis so he needs to wear a mask if he goes out of his room (depending what sicknesses are going around the hospital). He has no immune system, so he is on a constant drip with antibiotics going through every day doing the fighting for him. He is otherwise well which makes it harder to sit around waiting. He hates the hospital food and is not eating much. He looks like our little boy again, with all the weight from the steroids completely gone now. His hair is growing back really well, although a bit fine and patchy in some places, he looks like our little man again.