Seth went back into hospital on Wednesday for another check up and to get the results of his Bone Marrow Aspiration. They cannot find any trace of cancer in his bone marrow. This is the result we were hoping for. We just hope this continues to be the result over the coming months and years.
Last Friday we received a call from one of Seths doctors in regards to the virus he has at the moment (CMV). They told us that the last blood test shows that the virus had increased to over 900 (it requires treatment and admission at 1000). The team were concerned that if it was left untreated they believed it would be about 5000 by his appointment on Wednesday. My heart sank, thinking they were asking us to come into hospital. Luckily, this doctor managed to convince the hospital to fund a rare and expensive medicine to treat Seth in the hopes that it avoids another hospital stay. We haven't heard yet whether this medication has worked it's magic and the virus is being kept under control. No news is good news. If this drug doesn't work, Seth will be admitted again for treatment.
Seth is still on steroids and getting chubbier and cuter by the minute. On wednesday he weighed over 26kg - big difference to the 21kg he weighed at his skinniest! He is very tired and finds it difficult to do anything physical at the moment. He has tripped over a couple times and falls alot harder now. He hates his big tummy which keeps getting in his way and we are continuing to have wardrobe issues. "Do I look fat in this???"
Just wanted to let you know I think of you and your family every day. I have really appreciated your blog knowing how busy you have been with a sick child and how precious your time must be.
ReplyDeleteI look forward to meeting you one day. May God continue to bless you all.
Much love
Leah Hanns - Enfield Ecclesia
Hi all the Masons, thinking of you. Lots of love Gail woodcock
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