Seth

Seth

Friday, July 27, 2012

Things are ramping up now

Just a quick update to let you all know how things stand for us at the moment. We are back and forth to the hospital now getting all sorts of tests done so that a baseline is set. They are things like heart echo's, lung function tests, kidney tests, ct scan etc. They do this so they know how well his major organs are functioning before transplant so they can see any damage that might be caused by the transplant itself. He has been 3 times this week and next week is our last week at home. They try to get the kids to stay out of the hospital altogether in the week leading up to transplant but unfortunately Seth has to go in for a lumbar puncture and bone marrow aspirate on Wednesday. He is still doing okay at the moment - no more bugs seem evident.
Sienna did very well with her blood test. She was so nervous leading up to it but she was determined to be brave and not a tear was shed (she did have the numbing cream on). She was so proud of herself. Her first words after congratulating herself immensly for a job well done was "okay mum, now you have to go and buy me a present and a chocolate because I was so good". Needless to say she bought herself a little gift and packet of smarties. Our conversation on the way home was all about how I had to tell everybody just how well she did and how she didn't cry etc etc and I wasn't allowed to forget. How could I when she reminded me every 5 minutes!!!
This gives me hope that she will do well when it comes time for the bone marrow harvest. We will probably have to shower her in gifts and praise but she will deserve every bit of attention that she gets. She is a different blood type to Seth, so they will have to remove the red blood cells amongst other things from her blood in the lab before Seth can get the stem cells. The only change this makes is that it will be a little later in coming to Seth and his blood type will change to Sienna's. We told him he is going to end up liking fairies and everything pink like Sienna. It took him a while to figure out whether we were pulling his leg. We had him worried for a bit that he would turn into his sister.
Seth is admitted on 6th August and won't be out until he is well again after transplant which will God Willing be around the beginning of October. Nerves are now kicking in for me but onwards we go - there is nowhere else to go.

1 comment:

  1. Tell Seth I have plenty of Barbie dolls for him to play with, when he turns into Sienna! Countdown now Ali, enjoy your remaining time at home with your family. Xoxo Annie

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