Turn for the worst

Seth is quite ill now with a virus called RSV. He is having very high temps (in the 40's) which iv Panadol is having a hard time keeping down. RSV is responsible for bronchitis so at the moment they are treating him with a drug called ribovirin which is given similarly to a nebulizer. They put a plastic tent over Seth's bed and use a fan to blow the medicine in over a two hour period. They then scavenge the room for an hour (which is they suck out the air). I am not supposed to stay with Seth while he is having the medicine as it is a strong drug and can have side efects on me. I can come in with all the safety gear while they scavenge. Last night he was 40.3 degrees and so upset that they let me stay with him until he fell asleep. He has to have this done at 2pm, 10pm and 6am. There is a bedroom in the parents room which I can go to sleep in when Seth is having treatment. The bone marrow team came to see me today and said they may need to push back his transplant even further. They need him to be virus free as it can be very dangerous to transplant patients. At the moment it is still late June but they have now booked dates for mid July in case they are needed. Sienna is having her independent doctor appointment today at 12. It is a check up that is looking after her best interests, rather than looking after Seth's best interests. Thank you to all the kids at the Hunter Valley for their box of goodies. Seth wasn't well enough to look at it properly yesterday but he is better today and will have loads of fun with all those activities. Thank you all for thinking about him and remembering him.