It has been a while since I have updated. Seth went into hospital last Monday for his next round of High Dose Methotrexate. The hospital was packed sadly and we got a bed in the Variety Ward which is for children with highly contagious diseases. Whilst this gave me a bit of a shock, I was told that Seth would be put at no risk and the children who are contagious are completely isolated in their rooms. They said they are one of the cleanest wards around, because they have to be so super hygenic. So, once again he got hooked up on the Monday night for his drip, Tuesday morning they began the chemo and gave him another lumbar puncture. On our way out to get the lumbar puncture, we were told we were moving to another ward. We then went into Clancy Ward which is for kids with digestive troubles. We went through 3 room mates in 2 days in that room. Wednesday morning they took him off the chemo and began the process of flushing the chemo out of his body. Thursday morning, Seth had flushed out the chemo enough for us to be allowed home. Friday morning we woke up to Taylah running into our room yelling that Seth was throwing up. He was much better once we gave him some medicine for the vomiting and has been doing really well since.
The sad thing about this last visit was that each ward we went to, they were filled with kids that had cancer. Camperdown (which is the cancer ward) was bursting at the seams and the other 2 wards I went to seemed to be filled with these poor little cancer kids. There are just so many.
We received an official invitation to Seth's school for the upcoming head shave. They now have 4, possibly 5 teachers shaving their heads in honour of Seth. The school is trying to raise funds for a charity near and dear to our hearts called "Cure our Kids". There was another half page write up about the fundraising head shave which is being held this Friday 12 Nov in the local paper mentioning how the children in the school are raising funds in honour of Seth. It is very touching that so many people care so much about our little boy and want to contribute any way they can.
Seth is of course the guest of honour and he and Taylah will be making the first cut. It is a very exciting thing for Seth, although, now it is drawing nearer, he is getting a little nervous about being in front of the whole school.
We were hoping to send Seth to school this week, but there are still new cases of whooping cough being reported daily. We may not be able to get him back until next year if this keeps up.
Seth has to go to Westmead tomorrow (Friday) for a blood count and paperwork for hospital admission. Then, if they have a bed, he will be back in for more methotrexate on Sunday night.
Brett and I are getting very tired through this stage. I am not getting much sleep at hospital because he has about 4- 5 bags of fluid up at once, the drip machine keeps beeping all the time. When you are in a room with other patients and their drip macine beeps as well, there is not much sleep to be had! They also give him a drug to make him wee alot. So we are up and down all the time filling up bottles so they can be measured.
I will keep you posted after this next round of chemo and hopefully remember to get some photos of all the lines and bags of fluids he has to have up.
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